Finally it has come to pass that a decision has been made concerning my medical treatment. Both the inadequacy of the medical system and my own demands for more information have contributed to the delay. Enough said about that.
After consulting 2 surgeons, 2 oncologists, a specialist peritonectomy nurse and ................ searching my soul, I have finally decided against having the radical surgery that is proposed and to commence a course of palliative chemotherapy.
For those of you in the know, the chemotherapy will be Folfiri + Avastin.
This treatment will involve a two and a half hour session at the oncology clinic where the chemotherapy will be injected via the porta-cath in my chest. On leaving the clinic I will wear a 'pump' containing chemotherapy (hung around my neck) which will remain attached to me for the next 7 days. On the seventh day I will return to the clinic to have the empty pump removed. The next seven days will be free of chemotherapy. These 14 days make up the first of 8 cycles. so..... 7 days on, 7 days off. The first treatment is scheduled for next Wednesday - 23 February.
I haven't had this chemotherapy before so I don't know how I will react to it. The major side effects are likely to be hair loss and diarrhoea. Hats and scarves can solve the challenges of the hair loss, but I'm not looking forward to the diarrhoea. Mind you, not every patient has the same reaction, so .............. watch this space.
Please keep your fingers crossed for me.
My recent PET scan revealed that the tumours have grown - nobody is reporting any dimensions or by how much. The message is - we need to get this under way quickly.
So...... my Hopemobile and I - along with a girlfriend - are off to spend a few days on the South Coast at Mystery Bay. I'll be back in time for the treatment to start as scheduled.